“Serenity is not freedom from the storm, but peace amid the storm.”
The times of alarm clocks, fear of intestinal flu and trips to the emergency department are in the distant past for me now. However, I remember some of those trips quite vividly. I learned early on that letting the hospital know you are on the way is key. It didn’t guarantee that the attending physician knew what to do, but it at least increased the chances. I understand that now families enter the emergency department with letters of instructions complete with glucose infusion rates and glucose weaning strategy for the attending doctor. Brilliant. Why didn’t I think of that! 😀
In the early 1980s glucose monitors were not universally used in glycogen storage disease so I was cognizant of mood changes, fatigue, lethargy, sweating, tremors, etc. to detect hypoglycemia. An hour before I made the decision to take my son to the hospital I called ahead and explained the situation to a doctor in the emergency room. I gave him the phone number of our endocrinologist so he could confirm the information. My oldest son who was not quite three was not managing to keep anything in his stomach, least of all his cornstarch. Fever had worn him out and there was no resistance when he was gently wrapped in a blanket and lifted out of his bed to leave for the hospital.
I carried my son through the doors to the hospital and was greeted by a doctor with a butterfly setup in his hand. All I can figure is that my endocrinologist put the fear of God in him. It was a busy night and all the rooms were full. An examining table in the triage room had been prepared, the IV was started immediately and bloods were drawn. It was seamless.
My son slept peacefully with his head on my breast as I swayed back and forth in an uncomfortable waiting room chair. My eyes were closed but I was acutely aware. I felt his chest rise and fall with each breath and the warm weight of his baby legs rested on mine. Filtering through the sounds of beeping monitors, people talking and babies crying, I heard my son’s pump rhythmically delivering glucose into his exhausted body. Oddly comforting.
A room became available, the nausea past and the sun rose. It was a new day.
Lesson Learned: Peace comes from within.